Towards a Future Without Duchenne

Photo Credit: University of Bristich Columbia

Welcome to the Duchenne Stem Cell Forum

 

It is not well known that Duchenne boys are being successfully treated with stem cell therapies at clinics in India, Ukraine, Poland and at an investigational level in the United States. Our mission is to increase the knowledge of these successful therapeutic initiatives among patients, families, caregivers, physicians and the public.

 

We are committed to finding the latest research and therapy options available so that Duchenne families can find real therapeutic options and have reason for hope.  It has never been more important for families and patients to have actionable information.

 

Stem cell therapies are rapidly emerging as the primary deliverable option for Duchenne muscular dystrophy (DMD) patients. In late 2015 Canadian researchers designated DMD as a stem cell disease. Stanford University researchers came to the same conclusion in 2012. In February 2016 Polish scientists identified clear evidence of therapeutic effect from simple mobilization of the patients' own stem cells! This field is swiftly eclipsing all other therapy options for DMD patients.

 

In fact, a new bipartisan bill introduced in 2016 address the fact that “Europe and Japan have outpaced the United States in modernizing their policies to grant patient access to safe cell therapies," and admits that “regenerative cell therapy—which involves the use of cells to restore healthy organ and tissue function—represents one of the most promising areas for the next generation of groundbreaking treatments." (Janet Marchidroba, director of the Bipartisan Policy Center’s health innovation initiative, March 2016).

 

The benefits of stem cell therapy for Duchenne is undeniable. This forum is created as a dynamic exchange to share meaningful, objective information about stem cell therapies and outcomes for Duchenne muscular dystrophy (DMD) with parents, patients and health care professionals.

 

We intend to provide worldwide information on treatments, clinical trials and therapy along with commentary on public policy -- direct from the doctors, practitioners, patients, families and researchers working to find paths to effective therapy.

 

We invite you to review the research, clinical trials and therapeutic options available now.

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Tel: (503) 278-3273